News
Encephalitis – an invisible disability
24 October 2024
Every year, between 20-26th October, we celebrate Invisible Disability Week which was founded by the USA-based non profit organisation Invisible Disabilities Association (IDA) in 2014. The aim of this campaign is to promote awareness, education, and support for those living with an invisible disability and their families around the world. Global statistics on invisible disabilities […]
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Encephalitis International is PIF TICK accredited
21 October 2024
Encephalitis International is proud to be accredited with the PIF TICK. What is PIF TICK? PIF TICK is a UK quality mark for reliable health information. Encephalitis International has received this accreditation from the Patient Information Forum (PIF), which means our health information is trustworthy. Why is it important? The PIF TICK accreditation helps people […]
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Research Blog: The Effects of Parenting Stress on Behavioural Problems in Children and Young People with Acquired Brain Injuries
9 October 2024
Read below about Toby Engelking’s study from the University of Exeter. Toby is a student researcher and a carer for his sibling with an acquired brain injury: Growing up with a sister that had experienced an acquired brain injury, I have always been acutely aware of the potential adverse effects of damage to the brain. […]
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Psychology Today - The Inflamed Brain (September)
27 September 2024
By Laura Ryan The lucky, unlucky one. That is what my mom always calls me. The chances of developing autoimmune encephalitis, inflammation of the brain caused by the immune system in error, were thought at the time to be roughly the same as winning the lotto—except I didn’t win the lotto, and I certainly did […]
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Researchers discover latest insights into after-effects of severe COVID-19 on the brain
26 September 2024
New steps have been taken towards a better understanding of the immediate and long-term impact of COVID-19 on the brain in the UK’s largest study to date. We are delighted to announce that a study from researchers led by the University of Liverpool (including our CEO Dr Ava Easton and members of our Scientific Advisory […]
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Mpox and encephalitis
20 September 2024
Key points: Mpox, formerly known as monkeypox, can lead to rare but severe neurological complications. Encephalitis is the most common neurological complication of mpox infection, causing inflammation of the brain. Vaccination and early treatment are crucial in preventing severe outcomes of mpox infection. Introduction When you think about mpox (formerly known as monkeypox), you might […]
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We are closing our X account
16 September 2024
Our account on X, formerly known as Twitter, has been a source of connection and information for our members and wider community for many years. However, after an internal review, we have decided to close it. At Encephalitis International, we aim for everyone to be respected for who they are. Everyone deserves to feel supported […]
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Oropouche virus – what you need to know
29 August 2024
A virus in Brazil has been causing concern for health organisations around the world. Introduction The Oropouche virus (pronounced o-ro-push) has now been described as a ‘mysterious’ and ‘emerging’ threat in the prestigious scientific journal The Lancet (1). In July, authorities in Brazil reported the deaths of two adults from Oropouche fever as a result […]
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Psychology Today - The Inflamed Brain (June)
9 August 2024
Protect Your Brain and Body Health While Exploring the World By Prav Prathapan, Encephalitis International While encephalitis can happen to anyone anywhere in the world, certain regions and travel activities can increase your chances of exposure to the bugs that can trigger this illness. Importantly, in recent years, there has been an increase in the […]
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Death from encephalitis podcast
7 August 2024
In a recent podcast, Dr Ava Easton, CEO of Encephalitis International, and Prof Arun Venkatesan, Director of the Johns Hopkins Encephalitis Center, tackle a challenging aspect of encephalitis: mortality. This topic resonates deeply with many who have lost loved ones to this condition and addresses a reality that is often difficult to talk about yet […]
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Abi Burton
1 August 2024
From Olympian to Encephalitis to Olympian again! Introduction Encephalitis International is thrilled to hear one of our Ambassadors, Abi Burton, is set to join this year’s Olympics in Paris! But the journey to get here was far from an easy one. Born for greatness Abi Burton’s journey is one of remarkable resilience and transformation. Born […]
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Rebecca Adlington
1 August 2024
Introduction Encephalitis International are enjoying watching our Ambassador Double Olympic gold medallist Rebecca Adlington share her expertise at the Paris 2024 Olympics! This summer, Rebecca is hosting the Swimming coverage live in Paris and who better for the role? A personal connection The swimming sports star, who won two gold medals at the 2008 Beijing […]
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The Brain Games 2024
1 August 2024
Back by popular demand, BrainWalk returns but slightly different to how some of our community may remember it. The challenge has had a makeover and returns in September 2024 as The Brain Games – less focussed on steps and more on allowing our community to set themselves any daily challenge for the 30 days of […]
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Intersectoral Global Action Plan (IGAP) is unveiled by the WHO
11 July 2024
The World Health Organization has published a new toolkit to address neurological disorders called the Intersectoral Global Action Plan (IGAP). Introduction The world of neurology just got a boost. The Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders (IGAP) 2022-2031 is a resource that was created to address the significant global burden of […]
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Mapping the brain
25 June 2024
Scientists have created a brain ‘atlas’ for medical research Introduction In a momentous scientific achievement, an international team of researchers working with the BRAIN Initiative Cell Census Network (BICCN) have created the most detailed maps of the human brain ever made. This ‘brain atlas’ offers a 3D view of our most complex organ and identifies […]
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Psychology Today - The Inflamed Brain (May)
29 May 2024
Guardians of Health: Vaccines’ Role in Liberating Healthcare Resources by Dr. Blen Mamo Gebresilassie, MD Neurologist, Neuroinfectious Diseases Clinical Research Fellow at Columbia University under the guidance of Dr. Kiran Thakur Vaccines are one of medicine’s greatest success stories. In the realm of public health, few interventions have had as profound an impact as vaccines. […]
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Psychology Today - The Inflamed Brain (April)
9 April 2024
Measles: Catching Your Death—A Public Health Crisis By Dr Ava Easton, Encephalitis International I know about measles. I had it as a child and was pretty unwell with it, confined to a darkened room for more than a week with concerns raised for my eyesight, among other things. Decades later, I still know about measles […]
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Encephalitis vs. encephalopathy
22 March 2024
Encephalitis and encephalopathy are acute brain conditions which may lead to acquired brain injury or death. The similarity between these words can be traced back to the ancient Greek ‘encephalo’ which means ‘pertaining to the brain’. However, there are some key differences. Encephalitis is an inflammation or swelling of the brain, usually caused by viral […]
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Psychology Today - The Inflamed Brain (February)
22 February 2024
How Encephalitis Changed My Life A Personal Perspective: When the immune system erroneously attacks the brain. By Juliana Ortiz One minute, I couldn’t stop babbling about starting high school; the next, I was in an ambulance speeding to Miami’s Jackson Hospital, where I was eventually diagnosed with NMDAR-antibody encephalitis—a disease most people have never heard […]
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World Encephalitis Day 2024 - how to get involved
19 February 2024
We are now a matter of hours away from World Encephalitis Day 2024. Over the past six months, the Encephalitis International team have devoted hundreds of hours to our annual campaign in the hopes of raising awareness of encephalitis. Here are a few ways you can get involved on Thursday, 22nd February. If you have […]
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"Brain on Fire" - Susannah’s race against time
29 January 2024
There is a critical need for early recognition and of encephalitis. The urgency becomes apparent when we explore the real-life experiences chronicled in the book and movie “Brain on Fire – My Month of Madness” by writer, and Encephalitis International Ambassador, Susannah Cahalan. Encephalitis – an inflammation of the brain, caused either by an infection invading the brain, […]
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Life After Encephalitis
25 January 2024
Encephalitis is a devastating condition whose impact upon people should not be underestimated. It robs people of abilities most of us take for granted, it leaves people without their loved ones, and even in those families where the person affected survives the person they once knew can be dramatically changed. Life After Encephalitis by Dr […]
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Encephalitis International gains PIF TICK accreditation to become a ‘trusted information creator’
11 January 2024
Encephalitis International has been awarded the PIF TICK – the UK’s only assessed quality mark for print and online health and care information. To become a ‘trusted information creator’, Encephalitis International had to undergo an assessment showing it met 10 key criteria. This means you can be assured that what you are reading, watching or […]
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Our new global vision
14 December 2023
In our final episode of 2023, Dr Ava Easton, host of The Encephalitis Podcast, recently sat down with Phillippa Chapman, our Deputy Chief Executive, and Bella Bardswell, co-founder of Stellafai, to talk about the decision to change our name to Encephalitis International, the reasons and thinking behind the strategic evolution, and what comes next as […]
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