Encephalitis International

The Encephalitis Children's Appeal

For children and young people, the impact of encephalitis is not only on their brain – it can affect every part of their development, from education and friendships to identity, confidence, and emotional wellbeing.

For families, life can change in an instant.

From the 22nd June to World Brain Day (22nd July) we are aiming to raise funds to enable vital support for children and young people after by encephalitis.

Think Brain in F.L.A.M.E.S. Think Encephalitis

On World Encephalitis Day (WED) 2026, Encephalitis International launched what will be a lifesaving acronym: F.L.A.M.E.S. which reflects the urgent neurological signs that the general public and non-specialist acute medics should be aware of to help recognise encephalitis (inflammation of the brain) earlier.

F.L.A.M.E.S. stands for Flu-like Symptoms, Loss of Consciousness, Acute Headache, Memory Problems, Emotional/Behavioural Changes, Seizures. These are the symptoms most commonly found in both infectious and autoimmune causes of encephalitis.

We need your help today: download your F.L.A.M.E.S. resources and share these far and wide! 

What is encephalitis?

Encephalitis is an inflammation of the brain. It is caused either by an infection invading the brain (infectious encephalitis) or through the immune system attacking the brain in error (post-infectious or autoimmune encephalitis).

Brain and light bulb illustration

Three people every minute are diagnosed with encephalitis.

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Our mission is to rebuild futures around the world by saving lives, accelerating awareness and driving research.

Your Stories

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Tiff standing in front of a football pitch smiling.

Meningoencephalitis - Tiffany's Story

One moment really shocked me. I looked in the bathroom mirror and jumped because I didn’t recognise my own reflection. I touched the mirror to check it was real. Before I became ill My name is Tiff, and I was in my early 20s when I became ill with meningitis and autoimmune encephalitis in 2018. […]

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Autoimmune Encephalitis - Jonathan and Elle's Story

Jonathan, my husband of 21 years, passed away from health complications following a diagnosis of autoimmune encephalitis in 2024. How it started My story begins in February 2023 when my husband started acting strangely and the “essential tremor” in his hands seemed to spread to his legs. He’d been diagnosed with an essential tremor a […]

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Herpes Simplex Virus Encephalitis - Daniel's Story

Daniel sadly passed away after a few years from a diagnosis of Herpes Simplex Virus (HSV) encephalitis. This is his story told by daughter, Natalie.   Symptoms and diagnosis In September 2022 my father was showing odd symptoms like confusion and flu-like symptoms. My mother took him to the hospital and after performing several testing […]

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Upcoming Events

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My Brain & Medicine Birmingham, England 2026

My Brain & Medicine (MB&M) is an in-person event only. We would love you to join us in Birmingham, England on Friday 9 October 2026. This event is for anyone who wants to listen to the experiences of people who have been directly or indirectly affected by encephalitis and learn more about the after-effects. There […]

9 October 2026
The Old Library, Zellig, Gibb St, Birmingham B9 4AT
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Encephalitis 2026 - Registration

7th and 8th December 2026 Royal College of Physicians (RCP), London and virtually (Please note the attendance is both in-person and virtual. Those who register will be able to watch the Conference sessions on demand for 60 days after the event) Registrations are now open! (in-person and virtual tickets are available) Book your tickets here   […]

7 - 8 December 2026
Hybrid
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