Encephalitis International

World Encephalitis Day (WED) 2026

World Encephalitis Day (22nd February) is the biggest day of the year for people whose lives have been affected by inflammation of the brain. Since its launch in 2014, World Encephalitis Day has reached 225 million people directly in our efforts to grow international awareness of encephalitis.

This year’s campaign centres on the launch of F.L.A.M.E.S. This is a lifesaving acronym.

F.L.A.M.E.S. reflects the urgent neurological signs that the general public and non-specialist acute medics should be aware of to help recognise encephalitis (inflammation of the brain) earlier.

What is encephalitis?

Encephalitis is an inflammation of the brain. It is caused either by an infection invading the brain (infectious encephalitis) or through the immune system attacking the brain in error (post-infectious or autoimmune encephalitis).

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Three people every minute are diagnosed with encephalitis.

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Our mission is to rebuild futures around the world by saving lives, accelerating awareness and driving research.

Your Stories

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Acute Disseminated Encephalomyelitis (ADEM) - Vittoria's Story

Vittoria was diagnosed with Acute Disseminated Encephalomyelitis (ADEM) in Italy in 2011. On August 5, 2011, aged 42, I felt a sharp pain in my lower right back, but I didn’t worry about it because I thought it was premenstrual pain. On August 7, I suddenly fell for no reason and felt dizzy. On August […]

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VZV Encephalitis - Siw-Iren's Story - English Translation

I was taken directly to the emergency department. I remember being frightened—I understood that this was very serious. I knew I had been right all week! I had meningitis, but no one except my manual therapist had taken me seriously. In the medical notes from the emergency department, it states that I was very confused and restless. Clearly cognitively affected, with expressive aphasia. I remember wanting to call my son, and I tried to ask the person looking after me if they could get my phone from my jacket. All I managed to say was “there, there, there” while pointing at my jacket, repeating my son’s name. It was horrific being unable to speak while partly understanding the seriousness of the situation.

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VZV Encephalitis - Siw-Iren's Story - Norwegian version

Mitt navn er Siw-Iren Høgås, jeg er 50 år og har en sønn på 24. Jeg er utdannet sykepleier fra 1999. I oktober 2017 ble jeg rammet av varicella encephalitt. Har jobbet som leder ved ulike kommunale sykehjem i ca 15 år og vært assisterende avdelingsleder ved medisinsk avdeling i sykehus i 5 år. Jeg […]

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Upcoming Events

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My Brain & Medicine 2026

My Brain & Medicine 2026 – Registration is now open FREE virtual (online) event Join us online for a patient event and listen to professionals and lived experience speakers. The presentations are aimed at patients, caregivers and family members with an interest with encephalitis. Starting on Monday, April 27, 2026 at 1:00PM BST, this event will […]

27 April 2026
Online
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Family Resilience Day

Family Resilience Event 28-30 May 2026 Yorkshire Wildlife Park, Doncaster, UK   This is an in-person only event aimed at children (up to 16-year-old) and their families who experienced encephalitis and its aftereffects. It is an opportunity for both children and parents to connect with each other and share experiences in a safe environment. Schedule […]

28 - 30 May 2026
Yorkshire Wildlife Park
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My Brain & Medicine Birmingham, England 2026

My Brain & Medicine (MB&M) is an in-person event only. We would love you to join us in Birmingham, England on Friday 9 October 2026. This event is for anyone who wants to listen to the experiences of people who have been directly or indirectly affected by encephalitis and learn more about the after-effects. There […]

9 October 2026
The Old Library, Zellig, Gibb St, Birmingham B9 4AT
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