The Society’s stated aim is to improve the quality of life of all people affected directly and indirectly by encephalitis.

It fulfils this aim by providing services in the following areas:

Support

• offering a listening ear in the first instance via a manned telephone helpline/ information line
• providing direct support for adults, children and their families
• organising meetings, regionally and nationally, at which members can learn about the illness and its consequences and get together to share experiences
• facilitating family weekends and retreat weekends for adults
• arranging conferences, workshops and retreats, as well as seminars for professionals
• maintaining Link Up, a contact scheme for members
• signposting people to other organisations, where appropriate

Information Resources

• booklets, fact sheets and information packs on encephalitis and its consequences
• the Society’s Website: www.encephalitis.info
• regular newsletters
• tailor-made training packages for health, education and social care professionals
• links to other organisations

Raising Awareness

• amongst the general public through annual awareness weeks
• amongst relevant professionals through workshops, training programmes and conferences
• through representation on national fora and responding to government initiatives
• presenting information and research at national and international conferences and professional fora

Encouraging Research

• appointing leading medical and health care professionals to the Clinical Advisory Panel
• conducting research and working in partnership with other researchers and research institutions
• putting researchers in the field in touch with people affected
• undertaking surveys
• raising funds for research projects
• awarding grants for research
• working in partnership with other organisations on research and formulating guidelines for best practice and national standards in the UK

Governance

The Society is governed by a Board of Trustees, the majority of whom have been personally affected by encephalitis. Members to the Board of Trustees are appointed at the Annual General meeting.

Advisory Panel

An expert Clinical Advisory Panel provides the Society with professional resources. Members of the Panel include highly regarded experts from neurological, psychological, paediatric and other relevant fields. The Panel meets annually to exchange information and progress research initiatives. Members of the panel also assist with enquiries of a clinical basis.

Co-operation

The Encephalitis Society is a member of:
The Neurological Alliance
UKABIF (UK Acquired Brain Injury Forum)
British Neuroscience Association
(CABIIG) the Children’s Acquired Brain Injury Interest Group
Contact a Family
The National Children’s Bureau
Childhood Bereavement Network
The Rare Disorders Alliance
EURORDIS (The European Alliance for Rare Disorders)
RADAR (Royal Association for Disability and Rehabilitation)
The Scottish Society for Rehabilitation
The Pain Society
National Council and North Yorkshire Forums for Voluntary Organisations

Documents

Memorandum and Articles of Association of the Encephalitis Society and Standing Orders are available on request.

The Annual Review and Accounts are available and can be viewed and downloaded by clicking on your choice from the list below.

Annual Review and Accounts 2007
Annual Review and Accounts 2006
Annual Review and Accounts 2005
Annual Review and Accounts 2004
Annual Review and Accounts 2003
Annual Review and Accounts 2002
Annual Review and Accounts 2001

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Last modified 10 June 2008