How should we define who is a ‘carer’?
Are you caring for somebody with a neurological condition? If so we would like your
help. We are a team at King's College London and have been commissioned by the Department
of health to try and find a suitable definition for the terms ‘carer’ and ‘respite
care’. We would like you to complete a brief online survey to help us do this.
If you would like to take part in this survey please click here
Or for more information please contact David Williams on 020-7848-5418 or email
+12: Care Co-ordination Network UK ("CCNUK") - key working evidence.
CCNUK is gathering evidence to support the need for key working, and a big part
of that process is collecting case studies. They want to hear from parents or young
disabled person who have experienced life both without and with a key worker, and
would like to tell them what impact a key worker had in their life. Perhaps you
have never had a key worker and would like to tell your story and how you think
things could have been better with key worker support in place. Alternatively, you
may be a key worker and want to share your experience of the role, or a service
manager that could contribute a case study on how the service was established. CCNUK
would also be interested in hearing from practitioners supporting families with
disabled children, who have an anonymised case in mind where a key worker did, or
could, completely change a family’s life for the better.
If you would like to tell CCNUK your key worker story, and help support them in
proving the importance of key working for families across the UK, then please contact
them. You can send your written case study by post to CCNUK Head Office, Tower House,
Fishergate, York YO10 4UA. You can also contact the York office on 01904 567303
to arrange a time to talk through your story with their Admin team and they would
be happy to scribe this for you if that would be more convenient or by
Email David Williams.
Researchers wishing to advertise their studies on this page please
Contact US
Last modified:June 2012